Sickle Cell Disease Newborn Screening Follow-Up Program


Sponsoring Organization

Maternal and Child Health Bureau (MCHB)


Offers appropriate follow-up support services for individuals identified with sickle cell disease and sickle cell trait. Aims to improve care for sickle cell disease and reduce the number of individuals who do not receive follow-up care. Services are provided through local community-based organizations located in 16 states across the U.S.

What This Program Offers

Offers healthcare and follow-up services that include:

  • Care coordination
  • Counseling
  • Patient education and outreach
  • Access to a medical home

Who Can Receive Services from This Program

All individuals with sickle cell disease are eligible to receive services. Families of individuals identified with sickle cell disease through newborn screening are the primary target population for this program.

Geographic Coverage

Alabama, California, Georgia, Illinois, Indiana, Louisiana, Michigan, New Jersey, New York, North Carolina, Ohio, Oklahoma, Oregon, Pennsylvania, South Carolina, Texas

Topics This Program Addresses

Health and Wellness • Health Education for Community and Patients • Parents, Families, and Children